SUMMER ISSUES AND OR CHANGES

Who can start by talking about the different things our bodies do in the summer because of our conditions, or in addition to?

TRYING THIS AGAIN

HI FRIENDS=

I WOULD LIKE TO GET MY BLOG UP RUNNING AGAIN, SO I HOPE YOU WILL PARTICIPATE AND VISIT DAILY

HEAT

SINCE IT'S BEEN ASKED: HOW DO YOU ALL HANDLE THE HEAT WITH HAVING CHIARI?? SUGGESTIONS- COMMENTS? ADVICE???

Devinsdiary.com up and running AGAIN!

Hi Everyone!!! Its been some time so I am excited to hear from you all! I am working hard to finally get my new ideas published on my site but its taking some time since, things are a bit hectic at home(exciting hectic!!!) Let me know how you all are doing :)

My sister by Brain Matter- Kathy

This Blog is about Kathy- The always happy even when sad, positive, funny(very) motivated, hard working, loving, caring, beautiful woman!!!

I would like to tell everyone how we met, Well truth is- We have not officially met ( LOL) Really!!!
We have talked many, many times, my husband has met her, Kathy has helped us sort out some personal financial issues, and has become a very close friend yet,we have still to meet face to face
Kathy was brought into my life by more than chance, I'd call it fate. Truth is, we share a very special person, our PCP(primary care physician) and I believe God had every intention of us meeting the entire time. I had seen this doctor we share for years, as did Kathy but it wasn't until my long year and a half of testing, medical discovery, suggestions, scans, meds, every wrong choice that led my Doc to the right choice(by taking a chance) and diagnosed me with Chiari Malformation after ordering an MRI scan. It was funny because our Doc thought of Kathy when trying to decide what could possibly be wrong with me after treating me for everything that wasn't.

DOCS REALIZATION:
We were sitting in his office looking at the MRI results going over what Chiari was and suddenly he says" I have another patient with the same conditon, similar symptoms and I think you both need to talk. You need someone who can understand." I gave him permission to give Kathy my name, number, website the next time he saw her. It was some time before I heard anything and then one day, I had an email from her which started our beautiful friendship.

My SISTER BY BRAIN RIGHT-

Kathy, along with Shelly(who also lives here in Michigan) is my sister by brain right. We may not be blood relatives but we are connected by something even stronger, brain tonsils and CSF fluid :) I love you both to pieces, and want the two of you to meet, soon. In fact all three of us need to make that happen.

Thank you Kathy, and Thank you Shelly for listening to God's will *and Docs Kathy- and coming into my life and traveling down this path with me.

DEVIN <3

Chiari featured on HOUSE

Hi Friends-

Its been quite some time so I thought I'd start with a question to you all:

How do you feel about the HOUSE episode that aired Monday and featured Chiari Malformation?


Do you think it portrayed it accurate at all?

Do you think the actors character made a joke of the condition?

Symptoms

What kind of symptoms does everyone experience DAILY?

I have several but like anyone I find it comforting to know that what I am feeling is common!

Website DOWN

Happy Holidays Everyone. Devinsdiary.com is currently down as it is undergoing some clean-up and changes- Finally!

I hope EVERYONE had a wonderful holiday and that it was relaxing, and painfree

If you would like to chat or have any questions please email me devinkal@hotmail.com

Starting this UP AGAIN!!!!

Hello All~ Its been so long since I even wrote in this BLOG and Ive decided I miss it, and want it to start up again, so help me!!!

I had surgery July 31 at St Joes In Pontiac Michigan..It was major. I had salivatory glands taken out, fusion with graph, Plate and screws. In a brace now with no movement for four months to START. No bending, moving, No picking things up....anything could wreck fusion, and this fusion was complex due to the way they had to fuse it.....

Lets talk...whats going on in everyone elses lives currently?? How are you all healing????

Concerns, Suggestions, Ideas?

Let me know what you are thinking!

Prayers

This section is for people to post anybody that needs extra prayers right now.

I would like to start:

Sondra: Surgery June 28

Angie: Was decompressed home and well

Shelly: Decompressed home and well

Billy: CCI, Was in hospital recently for flu-like symtoms

POSTS

I hope everyone is feeling well.......I am SO-SO.....Still very nauseous. I am weak and falling A LOT ! I would like to know how everyone else is feeling!

Devin

Other treatments

Treat me please!!!! If you are lucky enough to get a doctor willing to work on you what has he done? Did it help? Did it make things worse?

Whats the zipper like?

Talk about the decompression surgery. Whats it like, how long does it hurt for? (Yes it hurts)

What are your symptoms?

Chit chat about what is plaguing your mind and body.

Medicine Chat

Just trying to organize this so that people can find the information they are looking for easier. So, let place and questions and comments about medicines here. :)

CHIARI AWARENESS BRACELETS NOW 4.00 WITH A FREE GIFT TOO!

I have lowered the price of the Chiari Awareness wristbands to 4.00 ( which includes shipping). I want these wristbands to be affordable so that everyone can purchase some for themselves, their friends, their families and their doctors, co workers. Please help to raise awareness by showing your support with a Awareness Bracelet. How can you go wrong it's a win, win situation!

Thank you, Devin

BACK BY REQUEST !!

I have started the blog again by request so that there is an area to post comments and/or questions, support one another and to talk to one another without the hasle of sending a mass bulletin through MYSPACE ( as most of us use) All I ask, is that you are all respectful of one another while posting and avoid hurting ones feelings even if you think your idea, answer or past experience may be more helpful than another individuals! Have fun with this and lets be here for each other!

Love, Devin

Starting the Weekend with a TIRED MIND

Ok, Micah is still sick. Paige is going stir crazy and I am starting to feel like I cannot stand up straight due to exhaustion! It is so hard when no one feels good. The house smells of lysol and I feel like we are in a doctors office....I do not want anyone to touch objects due to the fear of everyone getting infected by whatever is making its way around. The sun is out somewhat....BUT why is it that one day that can seem and feel like enough up lifting and others seem to not shine bright enough to make the slightest bit of difference?????

A nice LONG vacation sounds SO nice BUT do they offer one from life? LOL but seriously?!

HOPE.......and dreams of laughter to all of us !

COLD

Yuck. I will say that first about the nice weather that feels like weeks ago and in essence was days ago, leaving us with bitter cold, winds, and snow...
Last night was rough. As usual I was exhausted. Micah told me that his stomach hurt. This has been a rough week for the poor little guy! Asthma, coughing, congestion and now stomach!.....Well, the clock showed 3:30 A.M. when he called out to me ( time number 2) and at that point I was so tired I put a warm washcloth on his tummy and layed in bed with him. Our cat Nevaeh joined Micah and I......all in a twin bed. I am drinking coffee this morning and just thinking hey, it can't get any more hectic around here. I just pray that Paige and Micah both sleep in till at least 8.........

Have a great day everyone....oh and if I cant post before the fact, Have a Great Weekend!