Concerns, Suggestions, Ideas?

Let me know what you are thinking!

Prayers

This section is for people to post anybody that needs extra prayers right now.

I would like to start:

Sondra: Surgery June 28

Angie: Was decompressed home and well

Shelly: Decompressed home and well

Billy: CCI, Was in hospital recently for flu-like symtoms

POSTS

I hope everyone is feeling well.......I am SO-SO.....Still very nauseous. I am weak and falling A LOT ! I would like to know how everyone else is feeling!

Devin

Other treatments

Treat me please!!!! If you are lucky enough to get a doctor willing to work on you what has he done? Did it help? Did it make things worse?

Whats the zipper like?

Talk about the decompression surgery. Whats it like, how long does it hurt for? (Yes it hurts)

What are your symptoms?

Chit chat about what is plaguing your mind and body.

Medicine Chat

Just trying to organize this so that people can find the information they are looking for easier. So, let place and questions and comments about medicines here. :)

CHIARI AWARENESS BRACELETS NOW 4.00 WITH A FREE GIFT TOO!

I have lowered the price of the Chiari Awareness wristbands to 4.00 ( which includes shipping). I want these wristbands to be affordable so that everyone can purchase some for themselves, their friends, their families and their doctors, co workers. Please help to raise awareness by showing your support with a Awareness Bracelet. How can you go wrong it's a win, win situation!

Thank you, Devin

BACK BY REQUEST !!

I have started the blog again by request so that there is an area to post comments and/or questions, support one another and to talk to one another without the hasle of sending a mass bulletin through MYSPACE ( as most of us use) All I ask, is that you are all respectful of one another while posting and avoid hurting ones feelings even if you think your idea, answer or past experience may be more helpful than another individuals! Have fun with this and lets be here for each other!

Love, Devin

Starting the Weekend with a TIRED MIND

Ok, Micah is still sick. Paige is going stir crazy and I am starting to feel like I cannot stand up straight due to exhaustion! It is so hard when no one feels good. The house smells of lysol and I feel like we are in a doctors office....I do not want anyone to touch objects due to the fear of everyone getting infected by whatever is making its way around. The sun is out somewhat....BUT why is it that one day that can seem and feel like enough up lifting and others seem to not shine bright enough to make the slightest bit of difference?????

A nice LONG vacation sounds SO nice BUT do they offer one from life? LOL but seriously?!

HOPE.......and dreams of laughter to all of us !

COLD

Yuck. I will say that first about the nice weather that feels like weeks ago and in essence was days ago, leaving us with bitter cold, winds, and snow...
Last night was rough. As usual I was exhausted. Micah told me that his stomach hurt. This has been a rough week for the poor little guy! Asthma, coughing, congestion and now stomach!.....Well, the clock showed 3:30 A.M. when he called out to me ( time number 2) and at that point I was so tired I put a warm washcloth on his tummy and layed in bed with him. Our cat Nevaeh joined Micah and I......all in a twin bed. I am drinking coffee this morning and just thinking hey, it can't get any more hectic around here. I just pray that Paige and Micah both sleep in till at least 8.........

Have a great day everyone....oh and if I cant post before the fact, Have a Great Weekend!

Wednesdays.........

Hello....I went to Dr. Grain today and my MRI report was not ready...as in the MRI facility did not have the report ready..or at least made available for todays appointment. I was upset. Mostly because my 7 year old son, Micah was extremely sick; home from school and forced to attend this appointment with me. I am catching his cold now I am afraid. This scares me after Octobers' Legionaire disease, turning out to be pneumonia and a long hospital stay. YUCK! Who likes the thought of that however? I am in better spirits today however well; I was. The sun was shining today and days like this bring me a sense of hope and warmth. I love that feeling. I hate the fact though that I am extremely over tired from my own physical alliments and that due to a lack of two nights sleep....I am worn down. AND NOTE : IN EVERY WAY POSSIBLE. I had a quick stop in from an old friend today which made me feel good. I love that on occasion certain people think of me and stop in with a surprise that emotionally up lifts my spirits.

I would also like to add that I feel so blessed on days like today that I have friends on stand by to help, listen and let me vent, cry and offer up lifting thoughts and or ideas....

KEEP SHINING SUN........and in return I will continue to shine as well..

<3>

BEEN A WHILE

I hope this post finds everyone in good spirits.....

I am hanging in here but it has been rough lately,,,or shall I say still? I had an MRI on Saturday and will learn the results tommorow.....I am so tired lately....
I am honestly lucky if I can stay up until lunch time....and thats stretching it. I feel lonely lately. I feel like I have burdened everyone for so long and now that I should keep it all in. I miss my friends.....I DO. I feel that I have drifted from everyone, in so many ways. People do things and I almost do not recieve any invites at all. I do know why. I can't walk for too long without my leg going numb or without getting extremely tired., I do feel like the oldest 26 year old that I know. In bed early....sleeping most of the day away....dr appts etcetc.

I will stop complaining....I needed to vent and talk to someone....

Love and Hope, Devin