Devinsdiary.com up and running AGAIN!

Hi Everyone!!! Its been some time so I am excited to hear from you all! I am working hard to finally get my new ideas published on my site but its taking some time since, things are a bit hectic at home(exciting hectic!!!) Let me know how you all are doing :)

My sister by Brain Matter- Kathy

This Blog is about Kathy- The always happy even when sad, positive, funny(very) motivated, hard working, loving, caring, beautiful woman!!!

I would like to tell everyone how we met, Well truth is- We have not officially met ( LOL) Really!!!
We have talked many, many times, my husband has met her, Kathy has helped us sort out some personal financial issues, and has become a very close friend yet,we have still to meet face to face
Kathy was brought into my life by more than chance, I'd call it fate. Truth is, we share a very special person, our PCP(primary care physician) and I believe God had every intention of us meeting the entire time. I had seen this doctor we share for years, as did Kathy but it wasn't until my long year and a half of testing, medical discovery, suggestions, scans, meds, every wrong choice that led my Doc to the right choice(by taking a chance) and diagnosed me with Chiari Malformation after ordering an MRI scan. It was funny because our Doc thought of Kathy when trying to decide what could possibly be wrong with me after treating me for everything that wasn't.

DOCS REALIZATION:
We were sitting in his office looking at the MRI results going over what Chiari was and suddenly he says" I have another patient with the same conditon, similar symptoms and I think you both need to talk. You need someone who can understand." I gave him permission to give Kathy my name, number, website the next time he saw her. It was some time before I heard anything and then one day, I had an email from her which started our beautiful friendship.

My SISTER BY BRAIN RIGHT-

Kathy, along with Shelly(who also lives here in Michigan) is my sister by brain right. We may not be blood relatives but we are connected by something even stronger, brain tonsils and CSF fluid :) I love you both to pieces, and want the two of you to meet, soon. In fact all three of us need to make that happen.

Thank you Kathy, and Thank you Shelly for listening to God's will *and Docs Kathy- and coming into my life and traveling down this path with me.

DEVIN <3

Chiari featured on HOUSE

Hi Friends-

Its been quite some time so I thought I'd start with a question to you all:

How do you feel about the HOUSE episode that aired Monday and featured Chiari Malformation?


Do you think it portrayed it accurate at all?

Do you think the actors character made a joke of the condition?

Symptoms

What kind of symptoms does everyone experience DAILY?

I have several but like anyone I find it comforting to know that what I am feeling is common!

Website DOWN

Happy Holidays Everyone. Devinsdiary.com is currently down as it is undergoing some clean-up and changes- Finally!

I hope EVERYONE had a wonderful holiday and that it was relaxing, and painfree

If you would like to chat or have any questions please email me devinkal@hotmail.com

Starting this UP AGAIN!!!!

Hello All~ Its been so long since I even wrote in this BLOG and Ive decided I miss it, and want it to start up again, so help me!!!

I had surgery July 31 at St Joes In Pontiac Michigan..It was major. I had salivatory glands taken out, fusion with graph, Plate and screws. In a brace now with no movement for four months to START. No bending, moving, No picking things up....anything could wreck fusion, and this fusion was complex due to the way they had to fuse it.....

Lets talk...whats going on in everyone elses lives currently?? How are you all healing????

Concerns, Suggestions, Ideas?

Let me know what you are thinking!